Effective Date: April 24, 2021
The Personal Information We Collect
When using any of the Platforms, you may voluntarily provide information about yourself. LLS collects this information when you make a donation through our direct mail program, at an event, or online, order free materials from us, volunteer, sign up for discussion boards or our newsletter, shop at the LLS Storefront, or interact with us for any other purpose. We may also automatically collect information relating to your interactions with us and our Platforms, including recording calls made to LLS.
The types of data collected by LLS will vary with your particular use of the Platforms or your donation activity. Some examples of the types of Personal Information LLS may collect or access include:
LLS may ask you to provide certain contact information, such as your name, phone number, address, or email address.
Demographic & Survey Information
LLS may collect demographic and general profile data (e.g., educational, professional, and geographic information).
Customer Record Information
LLS may collect certain customer record information such as address, telephone number, financial account numbers, or any other financial information.
LLS may collect commercial or transactional information such as records of transactions with LLS.
LLS may collect certain health information through our Platforms that can include diagnosis and treatment information, information about past medical history, and other health information. LLS may also collect information about a patient’s referring provider and parent/guardian information if the patient is a minor.
LLS may also collect Internet Protocol (IP) addresses or a unique identifier for a mobile device from users of LLS’ Platforms as well as the date and time of access and the web pages accessed. LLS may also catalog your log-in information and the type of computer, browser, or operating system you use.
When you access and use the Platforms, LLS may receive, store and process different types of information about your geographic location, including general information (e.g., zip code) and more specific information (e.g., GPS-based functionality on mobile devices used to access the Platforms). If you access the Platforms through a mobile device and you do not want your device to provide LLS with location-tracking information, you can disable the GPS or other location-tracking functions on your device, provided that your device allows you to do so. Please see your device manufacturer’s instructions for further details.
Inferences drawn from the above information about your predicted characteristics and preferences
Other information about you that is linked to the Personal Information above
How We Use Your Personal Information
The primary reason for LLS to collect Personal Information is to provide personalization options for users of our Platforms, and to facilitate and enhance Site features that require user input, whether this information is submitted directly by the user of our Platforms, or collected by use of technologies such as cookies, as discussed below. Personal Information submitted through LLS Platforms is only used for the purposes for which it was collected. Below please find additional information on how LLS may use Personal Information collected from the Platforms.
We may use your information for any lawful purpose, including the following:
- To fulfill your orders for products and services you request;
- To enable you to make donations and to participate in activities, events, and offerings available through the Platforms;
- To respond to your inquiries, including providing information and materials you request;
- To deliver and improve our services, including to provide better services, products, and opportunities to our donors and visitors to our Platforms;
- To operate, personalize, and improve the Platforms, including for advertising and analytics purposes;
- To send surveys and promotional materials that may be of interest to you, and for other marketing activities;
- To prevent and detect fraud;
- To comply with the law and to maintain the security of our Platforms; or
- With your consent, or as otherwise disclosed at the time information is collected.
How We Use Your Personal Information
We may share the information we collect with other parties, including the following:
- To Fulfill Your Requests. We may share information with third-party service providers or vendors who process data on our behalf to help our business operations, such as payment processors and email service providers.
- Corporate Changes. We may share information as part of a corporate sale, merger, or acquisition, or other transfer of all or part of our assets, including as part of a bankruptcy proceeding.
- As Required by Law and Similar Disclosures. We may share information pursuant to a subpoena, court order, governmental inquiry, or other legal process or as otherwise required by law, or to protect our rights or the rights of third parties.
- Affiliates. We may share information with corporate affiliates, including those not under the LLS brand.
- Other Third Parties. We may share information with third-party companies, vendors, business partners, and other organizations whose products or services we think may interest you.
- De-identified or Anonymized Information. We may share information that has been de-identified or aggregated without limitation.
- Consent. We may share information with your consent or as otherwise disclosed at the time of data collection or sharing.
Persistent cookies are used to store the user's registration identification information from their basic registration and to facilitate their logging in to their personalized view of the Platforms. Persistent cookies enable us to track and target the interests of our users to enhance their experience on our Platforms.
Session cookies remember what chapter you are registered into or visiting online and who you are if you go from one LLS website to another in a session. This way we are able to cut down on the number of logins required when you visit various LLS websites during any given session.
LLS uses a tracking utility provided by a third-party vendor to track usage of specific web pages and other resources provided through our website. The vendor sets cookies as a method for compiling site usage information, but these cookies are only used to compile demographic models of site usage and are not tied to the user's personal information.
We may partner with ad networks and other ad serving providers (“Advertising Providers”) that serve ads on behalf of us and others on non-affiliated platforms. Some of those ads may be personalized, meaning that they are intended to be relevant to you based on information Advertising Providers collect about your use of the Platforms and other sites or apps over time, including information about relationships among different browsers and devices. This type of advertising is known as interest-based advertising.
If you wish to opt-out of interest-based advertising in mobile apps on your device by companies that participate in the DAA’s AppChoices app, you may download the app onto your device and exercise your choice. AppChoices is available at the links below:
We may also work with third parties that collect data about your use of the Platforms and other sites or apps over time for non-advertising purposes. We use Google Analytics and other third-party services to improve the performance of the Platforms and for analytics and marketing purposes. For more information about how Google Analytics collects and uses data when you use our Platforms, visit www.google.com/policies/privacy/partners, and to opt out of Google Analytics, visit tools.google.com/dlpage/gaoptout.
Third-Party Links and Tools
We may provide links on the Platforms to third-party websites or apps, including plug-ins that link to social media sites such as Facebook, Twitter, YouTube, LinkedIn, and Instagram. These websites and apps are independent from LLS and have their own separate privacy policies. LLS is not responsible for the privacy practices or content of such third-party websites or apps. We recommend that you review the third-parties’ privacy polices before you visit these websites or apps to learn about their data practices.
The Platforms may also include integrated social media tools or “plug-ins,” such as social networking tools offered by third parties. If you use these tools to share personal information or you otherwise interact with these features on the Platforms, those companies may collect information about you and may use and share such information in accordance with your account settings, including by sharing such information with the general public. Your interactions with third-party companies and your use of their features are governed by the privacy notices of the companies that provide those features. We encourage you to carefully read the privacy notices of any accounts you create and use.
LLS has implemented reasonable technical, physical, and administrative data security safeguards to protect the Personal Information under its control.
LLS retains Personal Information for as long as necessary to fulfill the purposes for which it was collected, unless a longer retention period is required or permitted by law.
From time to time, LLS may also share donor names and mailing addresses with other reputable nonprofit organizations on a limited basis in exchange for limited access to the names and addresses of their constituents. We have found this to be a cost-effective method of reaching additional potential constituents.
These organizations will not have continued access to your name and address unless you choose to respond to their initial mailing. We do not share email addresses or health-related data in connection with this list exchange.
We respect our donors’ choices and control over their information. You, as a donor may, at any time, have your name excluded from any donor list exchange activity. We also recognize that you may wish to limit the ways in which we contact you, and we offer the following options for restricting internal and external sharing of your contact information:
- Do not contact me by telephone.
- Do not contact me by postal mail.
- Do not contact me by email.
- Do not share my contact information with other nonprofit organizations.
- Limit your fund-raising appeals to semiannual solicitations only.
- Do not contact me.
To request that your name be excluded from list exchange activity or to otherwise change how LLS contacts you, please email us at firstname.lastname@example.org or feel free to contact us at 1-800-462-7831.
If you opt back into a specific service, you will receive communication in that manner regardless of your overall opt out selections. For example, if you request a newsletter subscription, we will provide you that subscription, even if you previously asked us not to contact you at all. We will take all reasonable efforts to ensure that your requests are honored in a timely fashion. Please note that if you are an active participant in one of our fundraising events, such as Team in Training® or Light the Night Walk®, you may receive communications related to that event regardless or your overall opt out selections. If you do not wish to receive emails about that event, please opt out using the “unsubscribe” link provided in the communication.
The Leukemia & Lymphoma Society
PO Box 98018
Washington, DC 20090-8018
Companies that collect Personal Information from California residents and disclose such information to third parties (including affiliated entities) for marketing purposes must, in response to a request by a consumer, either (1) provide a list detailing the categories of information shared and the entities to which such information was provided, or (2) provide a mechanism by which a consumer may opt-out of having his or her information shared with third parties. LLS has elected the second option, and you may request that your Personal Information not be shared with third parties by utilizing the opt-out right or sending your request, including your full name, email address and postal address, to Attn. Privacy, Chief Marketing Officer, The Leukemia & Lymphoma Society, 3 International Drive, Suite 200, Rye Brook, NY 10573. California residents are also entitled to know that they may file grievances and complaints with the California Department of Consumer Affairs at 400 R Street, Suite 1080, Sacramento, CA 95814; by phone at 916-445-1254 or 800-952- 5210; or by email to
Notification of Changes
LLS reserves the right to change this policy at any time. Since any changes will be posted on this page, we encourage you to check this page regularly. Your continued use of the Platforms will constitute your acceptance of such changes.
Dale G. Nissenbaum
EVP & General Counsel
The Leukemia & Lymphoma Society
3 International Drive, Suite 200
Rye Brook, NY 10573