ECD Global AllianceContact: Website
Population served: Patients, family members, and caregivers affected by Erdheim-Chester Disease, health professionals, worldwide
Other language(s): Spanish, French, and many other languagesMission:
Dedicated to awareness, support, education, and research related to Erdheim-Chester Disease, a rare multi-system histiocytic syndrome.
- Provides disease and clinical trial information, publications, referrals to physicians and care centers, patient registry, educational events, online supports
- Funds research exploring the diagnosis, cause, treatments, and cure of Erdheim-Chester Disease
- Advocates on behalf of Erdheim-Chester Disease patients